This short video shows Toby enjoying his favourite Bob the Builder DVD, whilst having a lot of complex partial seizures. It can be upsetting to watch a little child go through this so don’t feel compelled to watch it.

This video was uploaded here so we could show doctors exactly what we refer to and we debated with to open it up for general viewing, please don’t feel you have to watch it.

If you look at Toby’s hands, arms, legs and even head you’ll see jerks and twitches that he’s not in control of, there’s also big smiles and ‘hip thrusts’ (Toby’s way of expressing excitement) that are very much him!