Toby’s June 2020 update

The eagle eyed of you will have noticed that there was no update last month, as I am sure it has been for everyone, lockdown has continued to be tough and quite frankly I’m not sure where the time has gone. As we recovered from Covid-19 (confirmed antibody tests on...

Toby’s April 2020 update

At the end of March we all became ill with symptoms of Covid-19, the first few days were a blur as we tried to look after a seizing Toby who we’d deliberately knocked out with lots of drugs to try and stay out of hospital, all the while we felt rubbish too with...

Toby’s March 2020 update

March has been weird for all of us hasn’t it? For us the month ended in the worst way as we’ve all been pretty poorly which resulted in Toby having the worst day of seizures he’s had for years. Like everyone in mid-March we were keeping an eye on the...

Toby’s February 2020 update

February seems to have disappeared in the blink of an eye helped no doubt by having a lovely week away as a family in Southwold. Our half term holiday didn’t start well unfortunately with Toby having a seizure at school not long before we collected and then another...

Toby’s January 2020 update

I don’t know about you but January felt like the longest month ever and as ever, ups and downs for Tobes. You may have read that just before Christmas Toby was having a lot of seizures so we had to postpone our Christmas plans, the same happened on New Years eve so...

Toby’s December 2019 update

Happy new year to you. I hope you have had a lovely time over Christmas. December is often a mixed bag for us and this one was no different. Throughout the month we saw friends, had Christmas “dos”, a night away with friends whilst Toby was in Helen House, nights out,...