Toby’s January 2020 update

I don’t know about you but January felt like the longest month ever and as ever, ups and downs for Tobes. You may have read that just before Christmas Toby was having a lot of seizures so we had to postpone our Christmas plans, the same happened on New Years eve so...

Toby’s December 2019 update

Happy new year to you. I hope you have had a lovely time over Christmas. December is often a mixed bag for us and this one was no different. Throughout the month we saw friends, had Christmas “dos”, a night away with friends whilst Toby was in Helen House, nights out,...

Toby’s November 2019 update

November has gone in a flash and I’m pleased to say partly that’s down to Tobes being on better form and more importantly, sleeping better. We’ve removed the padding (and the dreaded Velcro) from his bed which seems to have had the desired effect of him not ripping it...

Toby’s October 2019 update

You may recall that we ended September in hospital after a bad day of seizures for Toby, whilst there we had a call from Helen House to see how he was as we had a stay booked with them later that week. After hearing that we were a bit worried they kindly offered for...

Toby’s September 2019 update

September was a busy month for all of us and, as ever, a double edged sword of great stuff and some really tough stuff. Tobes was back at school and loved seeing all his class mates and the brilliant teaching staff that do so much for all the kids at Redway. He was...