What do Dravet UK do with the money?

A lot of friends and family have helped to raise thousands of pounds for Dravet UK, the charity that supports us and other families. The charity works hard to promote awareness of Dravet Syndrome and has produced some excellent leaflets that help us when talking to...

Olney Mum’s Rise To The Three Peaks Challenge

[EDIT] Wow – how amazing were those ladies! Not only did they complete the 24 grueling miles but they also raised a staggering £2,398.22 for Dravet UK! Thank you ladies!   With only a week to go until they walk the 24miles of the 3 Peaks the Olney Mum’s...

Rachel’s Felting

Rachel, Toby’s aunt is making felted animals and shapes for Toby and Dravet UK, visit her Just Giving page to see pictures and more details https://www.justgiving.com/rachel-felts/
Flower Donations

Flower Donations

Marion Charles Toby’s Great Granny died in July 2014, instead of flowers friends and family raised £170 for Toby’s Trust, thank...

JB raises £1000 for Dravet UK

Thanks a million to ‘uncle’ John Braithwaite for completing his first open water triathlon in aid of Dravet UK. In total he’s raised £1060 so far! Keep up to speed with his latest fund raising on Just...