by Tim O'Grady | Dec 9, 2014 | Updates
November was another month of highs and lows for us, the main high being Toby’s birthday! Where has the past year gone? Difficult to believe that our little boy has been with us for a year already and what a year it has been. Over 100 ambulances, over 20...
by Tim O'Grady | Nov 4, 2014 | Updates
What a month! Whilst the number of seizures Toby has had has reduced the length and severity increased dramatically. The poor little boy had 3 seizures (one every seven days almost) that lasted over an hour and several around 20mins, the longest being 71 minutes which...
by Tim O'Grady | Nov 2, 2014 | News & Events
A good ‘Dravet’ friend of ours Rebecca had told us about a charity called Brainwave that works with children with neurological issues to create physical and mental development plans, her daughter, the gorgeous Neve has regular contact with Brainwave and it...
by Tim O'Grady | Oct 30, 2014 | Dravet Links and Info
A video from Jean’s for Genes featuring Galia and Arlo. http://www.jeansforgenesday.org/howyourmoneyhelps/thedifferenceyouhavemade/dravetsyndromefamiliesunite...
by Tim O'Grady | Oct 16, 2014 | Fundraising
A lot of friends and family have helped to raise thousands of pounds for Dravet UK, the charity that supports us and other families. The charity works hard to promote awareness of Dravet Syndrome and has produced some excellent leaflets that help us when talking to...
