January 2016 Update

Is it the end of January already? How did that happen? Seems like a lot has happened since Christmas, as ever, some good and some not so. The first good news came early in the month for us in the form of AMEGREEN, an agency that had agreed to take on a care package...

Toby’s December update

Happy New Year! Did you have a good Christmas? I hope so. It’s a difficult question for us to answer, we certainly spent time with friends and family, ate too much and had lots of presents but did we enjoy it? Kind of, but the daily partial seizures, the threat of big...
Toby’s November update

Toby’s November update

Once again it’s fair to say a lot has happened this month but I want to start with a note of thanks, well, several actually. Firstly to the ‘everyday heroes’ who get us through the day to day. In context, we ‘qualified’ for a respite package back in May but so far no...

Toby’s September Update

Apologies but I can’t open another update on a positive note, every time I write about good stuff that has happened recently life throws a curve ball and it all goes a bit pear shaped. After I’d posted the August update we had a good weekend with Toby although Kim was...

Toby’s August update

It’s been a pretty good month and it feels nice to write that. There have been some lows, there always is but there’s been a lot of highs which makes everything feel better. We started August with Toby recovering nicely from his PEG operation and us getting used to...

Toby’s July update

It always amazes me when I write these updates how much goes on in a month, it often feels like it flies and if we blink we miss it but taking the time to reflect on some of the memorable things that happen is really cathartic and reminds us of all the positive things...