by Tim O'Grady | May 13, 2025 | Uncategorized
The last few months, eighteen or so, have been particularly challenging as the number, type and severity of Toby’s seizures have increased significantly. This is a typical day or so in our lives at the moment, days like this are almost weekly at the moment....
by Tim O'Grady | Feb 8, 2023 | Updates
The last year seemed to have passed in a flash, I promise I’ll get better at posting these updates! There were some big milestones for Toby, from continuing the new genetic treatment through to swimming in the sea, playing his uncle’s puppy and getting...
by Tim O'Grady | Jan 4, 2022 | Updates
Happy new year! Well, it’s really about time we updated this page, so many of you have asked about Toby which is lovely so here goes with a latest missive. The last couple of years have been weird for everyone, at the height of the lockdowns life was both challenging...
by Tim O'Grady | Jul 5, 2020 | Updates
The eagle eyed of you will have noticed that there was no update last month, as I am sure it has been for everyone, lockdown has continued to be tough and quite frankly I’m not sure where the time has gone. As we recovered from Covid-19 (confirmed antibody tests on...
by Tim O'Grady | May 7, 2020 | Updates
At the end of March we all became ill with symptoms of Covid-19, the first few days were a blur as we tried to look after a seizing Toby who we’d deliberately knocked out with lots of drugs to try and stay out of hospital, all the while we felt rubbish too with...
