Toby’s November update

Toby’s November update

Once again it’s fair to say a lot has happened this month but I want to start with a note of thanks, well, several actually. Firstly to the ‘everyday heroes’ who get us through the day to day. In context, we ‘qualified’ for a respite package back in May but so far no...

Toby’s October 2015 update

October has been a tough month for all of us and we’re struggling to stay positive, we’re tired and running on empty even though compared to this time last year Toby’s seizures could be said to be better but the reality is, it’s just different. Last year we were...

Average

I’ve always been average. Pretty good a lots of things but not great at any of them, straight C’s that’s me and I’m quite happy with that. So when people say we’re amazing I can’t quite square it away with being average, I...

Partial seizure video 13th October 2015

This short video shows Toby enjoying his favourite Bob the Builder DVD, whilst having a lot of complex partial seizures. It can be upsetting to watch a little child go through this so don’t feel compelled to watch it. This video was uploaded here so we could...