Toby’s November 2019 update

November has gone in a flash and I’m pleased to say partly that’s down to Tobes being on better form and more importantly, sleeping better. We’ve removed the padding (and the dreaded Velcro) from his bed which seems to have had the desired effect of him not ripping it...

Toby’s October 2019 update

You may recall that we ended September in hospital after a bad day of seizures for Toby, whilst there we had a call from Helen House to see how he was as we had a stay booked with them later that week. After hearing that we were a bit worried they kindly offered for...

Toby’s September 2019 update

September was a busy month for all of us and, as ever, a double edged sword of great stuff and some really tough stuff. Tobes was back at school and loved seeing all his class mates and the brilliant teaching staff that do so much for all the kids at Redway. He was...

Toby’s August 2019 update

Summer is nearly over, not just the weather but the holidays too, it’s been a long couple of months. Sadly the last couple of weeks haven’t been great for Toby, he’s had some of the worst seizures in a long time, from 5 in one day, several while strapped into his...

Toby’s June 2019 update

It’s been a busy month for us which is usually the sign of a good spell for Toby and it’s not been too bad, lots of people, variety and love as usual. The month started with a visit from Karen from Scotland which is always lovely, especially as she brought cheese! We...

Toby’s May 2019 update

I know it’s late again but it’s been a busy week since the end of May as Tobes has been in hospital for an operation but more of that next month… May saw several firsts, not all of them good. As you pull into Toby’s school there’s the usual parking spaces but also a...